Sjögren’s India (SI), managed by patient volunteers, is dedicated to enabling patients and their families to “Live Well with Sjögren’s Syndrome (SS)”. SI works for empowering patients through education, creating better public awareness and providing a forum for interaction with healthcare professionals. Support in terms of counselling and lifestyle management tips is extended to patients/families through personal/group, telephonic and virtual interaction. SI is inspired by the Sjögren’s Syndrome Foundation (SSF) in USA.
- A support group for Ankylosing Spondylitis Patients
The mission of Antardhwani is to connect people and spread awareness about managing Ankylosing Spondylitis (AS) in Gujarat. We support research into the causes, treatment, and prevention of ankylosing spondylitis as well as the dissemination of information on research progress in this diseases. The primary focus of ASA of India is on research, patient advocacy, education and support, as well as raising awareness about this disease. The group consists of rheumatologists, physical therapists, and patients, with a diverse representation of participants.